Maggie Buckley, BCPA, MBA
Health Advocate
Maggie Buckley, MBA, BCPA, is a Board Certified Patient Advocate, health advocate, speaker, guideline contributor, and published author with more than 30 years of leadership in chronic pain, Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related connective tissue conditions. She has served on nonprofit boards, national and international advocacy initiatives, patient-centered research committees, and clinical guideline working groups, bringing a patient and advocate perspective to research, education, policy, and care improvement.
Maggie has contributed to major advocacy and research efforts through organizations including The Ehlers-Danlos Society, the Interagency Pain Research Coordinating Committee, PCORI, the Alliance to Advance Comprehensive Integrative Pain Management, and multiple pain and rare disease organizations. She has presented at national and international conferences, testified before local, state, and federal policy bodies, and developed educational programs for patients, caregivers, clinicians, and advocates.
She is the author of When Your Body Needs More Care: A Practical Guide to Hypermobility, Connective Tissue Disorders, and Creating a Life That Works (download the free ebook at https://edsconnective.com/ebook), and has authored or co-authored publications, guidelines, articles, and educational resources focused on patient advocacy, pain care, EDS/HSD, self-advocacy, and person-centered healthcare. Her work centers on helping people with complex chronic conditions navigate care, build practical support systems, and advocate for better outcomes.
If anyone asks why there are no hard copies available, there is an explanation: This is the first edition and the second edition is currently being updated as new scientific journals are published, as we know that there are a significant number of them coming between now and March 2027. The second edition will be available as a free ebook download, an at-cost hard copy, and a minimal-cost audiobook version in the second quarter of 2027.
Services
Care coordination: organize appointments, referrals, and follow-ups; support transitions of care
Insurance navigation: assist with coverage questions, prior authorizations, and appeals
Provider communication: prepare for visits, accompany clients, and ensure concerns are heard
Medical records management: request, organize, and maintain health documentation
Research & education: provide evidence-based information on conditions, treatments, trials, and new care options
Family & caregiver support: guidance and education for loved ones
Legislative & regulatory advocacy: guidance on navigating policy, patient rights, and healthcare regulations
Self-advocacy coaching: empower clients to advocate for their own care with confidence