Christie Cox, BCPA
Christie Cox is an author, patient advocate, and chronic illness strategist known for her compassionate yet deeply informed approach to supporting those living with complex conditions like hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and related comorbidities. After nearly two decades of misdiagnosis and dismissal, Christie was finally diagnosed in her late 40s. That inspired her to devote her post disability life to helping others navigate the medical maze with greater clarity, support, and validation.
She is the author of Holding It All Together When You’re Hypermobile, a patient guide that blends her lived experience with extensive research and expert interviews, offering practical tools and strategies. Christie’s ability to synthesize complex medical information into actionable steps has made her a trusted voice in the rare disease community. She prides herself on curating rich resources for others navigating the EDS diagnostic odyssey that she believes does not have enough insight, knowledgeable providers or well-attuned advocates - yet.
At Norbella, Christie brings her skillset to the front lines of care in an advisory role by conducting triage and screening consultations as she is able. She helps identify urgent medical needs, clarify symptom patterns, and prioritize next steps. Christie also creates customized WRAP (Wellness Recovery Action Plans), drawing on her deep research capabilities to design individualized strategies that address not only medical but also emotional, lifestyle, and logistical dimensions of chronic illness. Christie’s approach is equal parts heart and strategy. She offers what she once needed most: someone who sees the whole picture, believes your symptoms are real, and helps you build a step-by-step self-advocacy plan and skillset for healing and long-term health stability. Her work with Norbella is a natural extension of her mission—to make sure no one walks the hard road of chronic illness alone or unseen.
Wellness Recovery Action Plans (W.R.A.P.)
Christie’s Signature Offering
One-time fee: $250 • 60-min intake + research build + 30-min action handoff
Turn medical mayhem into a clinician-ready plan you can run on your own. Christie’s expertise in research is designed to help you find answers. This culminates into a customized action plan that distills your complex history into crisp, credible language that improves provider communication and speeds healthcare decisions. The patients she has worked with offer feedback of improved healthcare outcomes and reduced frustration with the medical system.
What you get
60-Minute Intro Call: To clarify goals to determine personal health needs and priorities to create custom documents such as health strategy, symptoms/trigger maps, red-flag
thresholds and flare plans, or assistance in finding treatment options to empower better near-term decisions.
Behind-the-Scenes Research & Build: She will conduct research to build evidence-informed options tailored to you based on your diagnoses, especially helpful for those with EDS/POTS/MCAS and complex chronic conditions. Example outputs can include a polished medical one-pager, a medical history timeline and more depending on how you prefer to leverage your WRAP Packet with options for:
Baseline routine establishment for maintenance care and healing habits
Pacing guidance for fatigue management
Flare protocol (home → clinic → ER, step by step)
Medication list + interactions to avoid
Care preferences; caregiver guidance and metrics to capture
Communication guidance, including doctor visit scripts and question lists
Work/school accommodations templates and resource links
30-Minute Follow-Up (Handoff): Follow-up within two weeks to review document, and a clear path forward you can execute independently.
Why it works
Great care follows great communication. Her guidance is designed to help you simplify and prioritize your care needs so you can be more seen and heard by your providers. Your W.R.A.P. translates lived experience into patient empowerment—helping your care teams understand your specific needs faster, reduce misdiagnosis and gaslighting risks, and align on next steps. Ideal for savvy self-advocates who want expert structure without ongoing hand-holding when its not necessary. Designed to enhance your own self-advocacy skill development and care management, this is a unique offering in the patient advocacy world worth the investment.
Services
Medical Summary & Records Timeline – one-page clinical snapshot and organized history – visually or in print
Appointment Prep & Provider Communication – goals and prioritization guidance, writing your concise narrative, visit scripts for communication improving health outcomes
Research & Education – evidence-informed briefs on tests/treatments matched to your profile and needs
Limited Provider Matching – EDS/POTS/MCAS-literate clinicians; second-opinion coordination
Accommodations & Accessibility – letters and template language for work/school; 504/ADA guidance
Disability Application Support – documentation strategy and impact narratives for SDI/SSDI/LTD
Limited Medical Records Management – request, organize, and maintain
documentation
Suggested Resources for Family & Caregiver Support – roles, boundaries, and
communication tools
Specialities:
hEDS/HSD & joint hypermobility
Dysautonomia (POTS/orthostatic intolerance)
MCAS & histamine intolerance
Spine/cranio-cervical considerations (Chiari, CCI/AAI, tethered cord—non-surgical navigation & second-opinion prep)
GI dysmotility & pelvic floor issues
Sleep, fatigue, and endocrine navigation (including adrenal insufficiency)
Testimonials